Cancer Agency Visit Feb 16th 2011

Today we met with my Oncologist Dr Oja. He was great. I really liked his manner, the tone he set, he took so much time with us, he answered a ton of questions, gave his opinion on issues and he was a wealth of knowledge. I was impressed.  I’m not easily impressed. He answered Maurice’s questions and included him in the visit. There was not one thing I could complain about.

So, to the nitty gritty…  he looked at the size of original tumor 1.1cm , grade of tumor (2) and my age and general health etc. He said they know % rates for  relapses,  risks of death…  with just doing nothing except the radiation which I will need to have for sure from 4-6 weeks of it. The % of risk of relapse if they add 5 yrs of hormone therapy (which for me was strongly recommended), and what the % risk of death is with hormone therapy….  then they added in what the risks would be with chemotherapy added for relapse and death. So I’ll just write it out as succinctly as I can (a chore for me as anyone who knows me knows..)

As things are, with doing nothing but Radiation = 25-35% of risk of relapse, 8-12 % risk of death from breast cancer.

Adding Hormone therapy (which was strongly recommended I do, and have done) = 5 yrs of Letrozole prevents a further 12-18% of relapses  (puts me about 13% chance or relapse) plus prevents  2-5 % risk of death from breast cancer  (puts me down to 6-7% chance death)

PLUS adding Chemotherapy = 6 treatments each 3 weeks apart (possible to do, but not strongly recommended) prevents extra 6 % of relapses  (would put me at 7%) plus prevents  2-4 % of deaths.   (would put me 4-6%)

The chemo is harsh on the body and there are potentially serious side effects/complications that didn’t seem worth the risk to do it considering that my cancer was caught so early and only one lymph node involved.  Dr Oja went over all of the risks and complications with us and did not strongly recommend I do chemo as well, but that choice is up to me. I have made the decision that I am not going to do the chemo.  I walked in there thinking I would throw everything I was offered at it, but after looking at the stats and the risks and the percentages, I feel like I’m making the right decision, and at the end of the day, that is what is important.. is that I’m comfortable with the decision that I have to live with. 🙂

I also asked about clinical trials that were going on, so we will see if I am to be a part of them, they have done some blood work today, and I also had a chest xray today, got my first 3 months of Letrozole  and met with the clinical trials nurse.

I’m still having some nerve pain from the surgery, and areas of numbness. I am meeting with my family Dr on Feb 22nd, and I’ll let her see the data and let her know what I’ve decided, and we will take a snapshot as to how I’m feeling and see if I feel ready to go back to work. Today I don’t, but the 22nd is 6 days away so I’m hoping that things will feel better by then! 🙂

I will post things as they happen 🙂 I’m grateful Maurice was with me.

…Pam…

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8 thoughts on “Cancer Agency Visit Feb 16th 2011”

  1. Pam, that is the decision Lenora, my dil, made. Radiation and no chemo….she is around 6 years out now from her diagnosis.
    Great you have a doctor who made plain all your options. Lenora also had hormone treatment as her cancer was fed by estrogen.

  2. Thanks. I’m feeling pretty good about the decision. I’m going to talk to my family Dr on Tuesday and discuss it. But I think my mind is made up. Then after that.. next stop is the oncology radiologist..
    the next hoop to wellness.
    …Pam…

  3. So good to hear how localized the dancer is. Sounds like the decision-making process has been made much easier having such a good oncologist to work with. Nice to have a good rapport developed early in the relationship.Stay strong Pam. Hope the arm sxs begin to resolve soon.
    Wanda

  4. I think you have made the right choice. Mom almost died when they tried to give her chemo (twice!). The survival rate is so good now with the radiation and drugs and especially since you caught the cancer in its early stages. We are thinking of you and sending healing thoughts your way.

  5. Thanks Cathy, Laila.. and Thanks M for putting it into words that were succinct, something I struggle with daily. 🙂 Well said.
    I’m feeling comfortable with the decision, but I will talk to the family Dr on the 22nd and we will go over things. I can change my mind if I want to, and start the chemo, but for now.. it makes sense for me to follow my original decision. But, like decisions, I think there is value in being objective and in seeing what family Dr thinks. 🙂
    …Pam…

  6. The doctor was really terrific, that’s for sure.

    The discussion about whether or not to include chemo in the treatment process was the toughest choice. From what I understood, the prevention of death due to cancer was almost balanced by the risk of death via complications from the chemo. Taking chemo would prevent 3 deaths from cancer, but cause 2 deaths from complications.

    If Pam’s cancer were different, more severe, not localized, etc then chemo would offer more benefits. But it seemed that for her case, it was as risky to take it, as it was to not take it.

  7. Very happy to hear you will not have to endure chemo Pam,, Thanks for sharing the details. It puts it in a better perspective. Looks like you’re on top of it :)Cathy

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