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Surgery confirmed

Surgery confirmed:

Have opted for lumpectomy with sentinel node biopsy, and radiation..

I will be having my surgery tomorrow. Jan 11th

I have to be there at 0715 to nuclear medicine… get injected with radioactive dye – to see which are the sentinel lymph nodes.

Then I go to surgical admissions and get a fine wire insertion into right breast (to show surgeon where rxactly the tumour is), where to cut

Then I have surgery 2 pm.

I expect to be home that evening….

I will have to wait for the staging and see if it has spread to the lymph.. if it has, will need to do mastectomy and lymphadenectomy… and chemo etc…

But for now… lumpectomy/sentinel/radiation x 3.5-6 weeks……

Wish me luck. M will be with me, and Maggie is coming to be there as well. 🙂 I’m a lucky gal.

…Pam…

Surgery Update

It’s not official yet, because they are still waiting for a “fine wire” time in radiology department, but nuclear medicine called this AM (Monday Jan 10th) at 0830 and told me that I was to be at Nuc med appointment for 0745… tomorrow morning. (They do these fine wire things on Tuesdays only. )

I then called Surgeon’s office as I had not heard from them Friday as to OR date, and receptionist told me that she had the OR time, but she wasn’t going to tell me it until she gets the “fine Wire” time from radiology as they need to do that bit before the surgery….

So right now it’s on hold until she hears from radiology and she said she’s going to call them around noon to see what’s up. I expect to hear from her after she speaks from them.

I said, so you are saying I have an OR time, but we can’t confirm that it’s a go for tomorrow because of radiology –not having a fine wire time booked?

She said yes that’s right, but that Dr J will have a hairy if they can’t get me in. I told her I would have a hairy too.

SO… it’s very much looking like it’s going to happen tomorrow, just need this last piece of the 3 prong puzzle to be fitted in.

Nuclear medicine = booked 0745

Fine wire Radiology = no time given yet, apparently it all hinges on this.

OR time = booked  (but I don’t know exact time yet, she didn’t want to give me yet until she gets Fine wire.)

I will post an update as soon as I know anything.

…Pam…

Next Dr appt – Dec 30th

I called the surgeon’s office, to see if they had a date set yet for my surgery, and Linda said no, that the Dr had to book it. So it’s more waiting. She said they don’t do a lot during the Christmas holidays so I’m thinking it will be Jan 4th or 11th, at least I hope it’s that quick. I don’t like the idea of this thing being in me longer than it has to be, and I want it out.

I dropped off the pre op sheet to my family Dr’s and was told I need her to do an assessment on me and send that to the hospital, so I am going to see Family Dr on Thursday Dec 30th (in 2 days) and get that done. So things are progressing, just not as fast as I would like.

A natural tendency is to wonder if the thing is growing and invading the lymph nodes while I wait for surgery. I’m really working hard to curb my thoughts from going down that road, and instead I am trying to focus on staying calm, relaxed and am sending healing thoughts to the area, telling my body to wall it in  and not let is spread further! Who knows if imaging like that works, I believe it does, and so will continue to try it.

I’ll post more when I know more.

…Pam…

Breast Cancer diagnosis

Well, I was handed an early lump of coal this year, in the form of a breast cancer diagnosis (right breast) . I am going to put in some posts as things/treatment progress, in hopes that if someone else is out there, feeling alone, feeling overwhelmed.. that you know you are not alone. Yes, this is a road we have to walk alone, but we can walk with company, in the forms of friends and family, your health care team, and internet friends, support groups.  My husband Maurice has been super, he’s driven me to every scan, xray, mammogram, Dr’s visit. He’s been my rock, and I hope that everyone going through this has someone like him, that they can lean on. He gives me strength. My friend Maggie came with me for a gyne surgery I had to have, and has also been there. Other friends have reached out to me now that I’ve gotten this diagnosis and it really warms my heart. 🙂

Well this has all happened quickly. I went for my yearly mammogram, and I’d put it off for a few months, getting my reminder letters in the mail. I’ve had other issues I’ve been dealing with lately and thought, what the heck, may as well get this done as I’ve been going to ultrasounds, Drs etc.. so booked my mammogram, which I had mid December 2010

About me: 53, female,  never had kids, early menarche (10yrs old) , never breastfed, obesity, post menopausal – those are the things that have put me higher risk for the breast cancer..

I got a call from Surrey Memorial Hospital Radiology department, letting me know I had been booked for a more focused mammogram, with an Ultrasound (and I figured maybe a biopsy) Dec 15th. So, on the 15th, I took some pain meds in case they did do the biopsy. They did the mammo, and the tech said they always wanted to do an Ultrasound. I could see the “highly suspicious mass” in question on the ultrasound screen and it looked and felt ‘wrong”… like it did not belong, and wasn’t healthy looking. It was not big — only  8x7x6 mm and it had some spiky (spiculated) edges so looked like a little minesweeper, like in the game. It looked black and dense. It was a bomb alright.  It is 8 cm from nipple in right upper outer quadrant (the most common spot for breast cancer) at about the 10 o’clock position.

The tech went and spoke to the Radiologist, who advised her that he wanted to biopsy it, based on what was seen on the mammogram/Ultrasound.  He came in and we talked. I asked him What were the risks of malignant seeding by doing the biopsy?  What I wondered was, in plain English, would the act of doing the biopsy, of sticking a needle in the mass and then pulling it out through healthy tissue, cause cells to be deposited along the tract thereby spreading it?  He said that in some cancers, it has found to be the case, but not with breast cancers. My surgeon told me the same thing when I saw her.

So the breast biopsy was no big deal. He told me that he was going to put a nick in the side of my breast, and use that area to insert the needle and use the ultrasound to guide the needle to the mass. I did not feel the needle even go in, and it did not hurt at all. I know others have found it uncomfortable, but I can’t say that I did at all. He showed me the “gun” they use to probe the mass and collect a sample… it’s like a smaller needle that shoots out from the main needle, grabs the biopsy sample and then pulls it back into the needle. It was cool to watch.  The radiologist showed me the “gun” they use and warned that when he pulls it, people tend to flinch, mostly because fo the noise it makes. I told him that I would not, that I was relaxed and that that I wouldn’t move. And I didn’t. He told me that he has never seen anyone sail through it, that most people just can sit for 1-2 samples… and often it’s not enough of a sample, so they end up having to come back to have it done again. He took 5 samples from me, 2 of which he called “slam dunks!” and showed me, we watched the needle shoot out into the center of the mass. Fun stuff. 🙂 I told him he could keep going and take it out sliver by sliver if he wanted to lol lol . He told me I go on record as being THE calmest person he has ever seen have a breast biopsy. A badge of honour of sorts 🙂

Then it was a hurry up and wait. I had an appointment to see my family Dr on Dec 21st, as she knew I was having the mammo, and a pelvic US done (unrelated to the CA) and wanted to discuss my results. Did I mention that my family Dr is Fabulous? Her name is Dr Louise Low and she works out of Surrey BC. She is just awesome and always answers my questions, listens to my suggestions or concerns.

I saw her on Dec 21st and got the news. She had my path report and it shows “invasive adenocarcinoma”.  I was expecting it. It was not big enough that I could feel it (it’s a bit bigger than a pea) but because of having alot of cysts in my breasts, it makes it hard to feel new lumps.  Anyways she told me that she had gotten a recommendation from radiologist and would send me to Dr Janzen, a surgeon in Surrey BC , who specializes in Breast issues. I got in to see her Dec 23rd, so that tells you something when you can get in to see a surgeon in 2 days. Can’t be a good thing in that you know it’s serious, but it was a good thing, in that things are moving fast. I like that. I like that a lot.

I met with the surgeon on Dec 23rd. We discussed the options that are open to me. So my choices were basically a lumpectomy/sentinel lymph node biopsy/radiation   or  a mastectomy (which they can reconstruct the breast at the same time, but it might take longer to get in, as they would need to coordinate with plastic surgeon..)  After doing the breast exam on me, she confirmed that there was no way that I would have been able to feel it on a manual exam. That made me feel better. The surgeon gave me a packet of information that breast cancer patients get. Included in it is a book that is about 1.5 inches thick, and it’s about breast cancer and gives a lot of info to allow you to make the best decision for you. I have read the book. Being a nurse I knew a fair bit of it, but it was still well written and informative. I did learn some things 🙂 <– always a good thing.

My decision was to do the lumpectomy/sentinel node biopsy/radiation. The earliest I can get that is early January sometime. I don’t have a date yet for it.

Surgery: well I know I will be able to come home the same day, that I’ll have a drain in my armpit to drain fluids and that I’ll have a home care nurse coming to see me at home. I will have radiation but I don’t know when that will start or for how long I have to have it. I do know it’s daily once it starts.

Work has been great, very supportive. I am a nurse and have been x 30 years. I am lucky to have such a supportive place to work in, and my co workers and friends have been really great. 🙂

It’s not the Christmas gift I would have wanted. In the grand scheme of things though, I feel like it is a gift that it’s been caught early so that gives  me hope. It’s still small (as of last week), and yes it is infiltrating, but hopefully it has not spread to lymph yet. fingers crossed.

If you are reading this post and you’ve never met me, or don’t know me, then I welcome you to our blog and hope that by my posting what is happening to me as it happens, will help others to know what to expect, or how things happen, in what order etc. Please feel free to add comments if you want or if you have questions, I might be able to answer.

As for emotions I’m feeling. I am doing ok. I can’t worry about what if, etc, as I don’t have the facts. I will know more when the cancer is removed and tested and staged. Until then I don’t know really to what extent this cancer has spread, and I’m not going to waste any precious energy worrying about what I have no control over. Those of you who do know me, know this is how I have lived my life, and so I’ll continue to do that now. 🙂 I will do that, and I will fight!  And as my sister Cathy says ” we will get through this.”. And so we will. 🙂

Right now Dec 26th: I’m optimistic and hopeful and feeling very supported by my husband, family and friends and the medical community.

Update Sept 19th Max

Well this morning Dr. Shawn from the Scottsdale Veterinary Hospital called to see how Max was doing. It is so great to get this kind of caring and follow up. Max has made steady gains under this Vet’s care. Today we got the order to stop the predisone, so that is great news. We are to watch for any signs that he has worsening of his symptoms, so we will do that.  Max still has some weakness,  but he’s improving.  I want to say a word about the Vet’s. I know I keep gushing about how good they are,  but I believe in  saying when something is wrong and why,  and I certainly believe in saying when something is so very right. To that end:

I feel impelled to just say how totally impressed we are with Shawn and with the entire staff at the Scottsdale Veterinary Hospital. We could not have asked for more friendliness, helpfulness, empathy or support.

It’s been an amazing ride with our Maxie, but we felt good knowing we were the homecare part of the team, and that Shawn was in control of the situation and monitoring max’s progress daily. Night and Day from the other Vets, where we got ” well he’ll either make it or  he won’t”  WHAT?  That’s what you are going to say to someone coming in with the trauma of what happened…we felt like that vet was cold and heartless. NOT so at the Scottsdale. We saw thorough professionalism. We saw caring.

We were outside the door when they did Max’s blood work and catheterization weeping because we could see them calming him and the site of him in the arms of the vet assistant, she was stroking his face and talking to him and had him in her arms.. THAT was the care we were looking for. We knew from the first assessment Shawn did with Max that we had found our new vet. Thank you Shawn and Thank you too to all of the other staff who have called us for frequent  updates about Max, monitoring him, whether it be Shawn, a different Vet (I think they have 5 vets at that hospital) or any of the office staff or vet assistants.

KUDO’s to all of the staff, we certainly appreciate all of your help.

…Pam…

Sept 12 Update for Max

Last night Dr Shawn called (our Vet) and he was pleased with the improvement Max has been showing and said that as long as things are holding the course and he’s improving, no need to see him yet, that he will call in a weeks time. Up to now the office has been calling every day or two to see how Max has been doing. I can’t tell you how impressed I have been by that. It’s really made me feel like we’ve finally found a vet that cares and goes that extra mile. If you want your pet to have good care, take them to Scottsdale Veterinary Hospital on Scottroad and 70th avenue, across from the Krispy Kreme.

Anyways no major change in Max since the post 2 days ago. He’s still walking now on all 4’s at times, but sometimes he knuckles the front left paw, and sometimes he walks normally. He’s unsteady at times and leans to one side, but he’s mobile and able to get himself in and out of the back patio area up and down one stair. He could not do a whole flight of stairs, but for the one, he’s able to manage. Last night was the first night he has slept without a pain med to settle him and he did ok. I came upstairs to bed at 2:30 and he was panting away , and after I gave him a good long drink of water he settled.

we have been keeping the bedroom window open for fresh air and the fan on oscillate to move the air around at night as it can get stuffy upstairs. and we have to keep the door closed at night so he doesn’t fall down the stairs.  Anyways that’s been more comfortable for Maxie, who is quite sensitive to the heat.

Our company has gone now and the place is quiet, Max was pretty good with having new people in the house, especially good really, considering he’s a barker and growler when “strangers” to him are around.. he did bark a bit at first but then he was pretty good. 🙂 Way to go Maxie!

A huge thanks to Nick for bringing us his gift of the watercolour of Buck. Nick you will never know how much this means to us. We lost Buck not quite a year ago now, and it’s still painful for us, so to have him back with us like this, is a great comfort. A great comfort. Our family is whole again. 🙂 Now when Maurice and I are in the family room with Maxie, we have Buck watching over us 🙂 Our angel Buck. You made that happen Nick, and it is an extremely meaningful gift.

Today is a lovely sunny day and my vacation is coming to an end. I’m back to work in 2 days, but I’m hopeful my brother Peter will be coming out to visit us after this next stretch I have to work…  Come Peter, and you can see Maxie’s recovery and fight to get back on the road to health. 🙂

…Pam…

Max Update Sept 8th 2009

Max slept upstairs with us again, and did pretty well. No diarrhea last night. He got up with Maurice this AM around 6:30 and Maurice carried Max downstairs and out and he peed. His appetite continues to be good, and we are encouraged by the occasional correct usage of his left front paw. (usually he’s got it curled though and not walking on it, but the few good steps shows us that he is correcting it and knows he has a foot there at least. I’ve not done a pain test to see if he reacts to pain on the foot, but should do. I’ll try it when I do his range of motion exercises. Well, I may as well do those right now so I can let you know the results ! Be right back.Max hurting

Ok… well his range of motion was good. I did not get a response when I pinched his paw but I was not pinching too hard, Maurice said he did get a response this morning so that’s great. As I was on the floor doing Max’s range of motion exercises and massaging his legs and shoulder the Vet called (Shawn) and he wanted a progress report. He was pleased with what I told him regarding the walking. He said that sounded really hopeful, and he decreased his prednisone to one tab per day now instead of one tab 2x a day. He asked if there was still blood in the stool and I told him no, none that we saw. He was happy with that. He asked about the diarrhea and I told him last night was good, but night before was 3x… he’s asked that we monitor it and if he continues to have diarrhea by the weekend when he will call for his next report, that he will add a medication.

So the short of it is: vet is happy, prednisone decreased, all other meds the same. We’ll continue to do range of motion and massage on the limbs.